Saturday, December 31, 2011

Happy New Year













Well its the end of another year, and I had the pleasure of spending some quality time during the last of it down in Southern California with Kelley, Leona, Wilbur and Dudley. Between the fact there is no snow in tahoe, unbelievably cheap fares with Southwest Airlines, and the many attractions of San Diego County,it's been easy to contrive reasons for popping down to visit. In case some of you aren't familiar with the area Kelley is living in during the winter to pursue her therapy at Project Walk, it is very close to a number of high quality beach destinations including San Onefre, Carlsbad, Encinitas, and Solano Beach.


These last three are charming little beachside communities, cute and laid back (at least in the winter). I have been getting very into stand-up paddle surfing lately , so have scoped out the breaks, camping, and SUP rental shops, and there are some GREAT options. Julie Munger and I visited with Kelley in early December and had some great fun on some small waves, and great weather. We also met a parapalegic rock star named Jeremy in the parking lot. We got there when he was done, so didn't see him surf, but watching him scoot himself up the beach 200 plus feet unassisted to his car was inspiring on its own.



Julie and I also had a some quality time with Kelley. Her nerve pain is still a constant and sometime brutal fact of life. But she had a blessed reprieve for a little while during our visit, and we spent almost 3 hours paddling and hanging out on the beach in the Carslbad Lagoon. Some great bird watching, and I was amazed at how strong Kelley paddled. She went pretty hard for almost 1.5 hours. The next day after I left Julie took Kelley to REINS, a non-profit facility that enables disabled individuals to horse back ride. Julie got her signed up in the program, so hopefully she will able to do that soon, its less than an .5 hour from her house. Having spent the last few months around my partner Lisa's new horse, I have been reminded how calming and grounding being around these beautiful animals can be.

Then I went back down the week before Xmas with my friend Jennifer Yates in her Dolphin Camper, and our doggies to camp for a few days at San Elijo state beach in Encinitas. This campground was great, and just had to trot down the stairs to get to the surf break. Kelleys nerve pain was more intense during this visit, so we didn't get out paddling, but we did do several visits to the beach. I read recently that some scientists believe that very good things happen in our brains when we stare out over large view scapes that go on for ever, similar to meditation. Explains the calming experience of staring out over the ocean. We also had an awesome virtual surfing session, when it was a little to big for me to go out one day. Watching the big boys get the big rides, in between getting crushed, was very exhilarating, even from the safety of our beach blanket.

Kelley also brought her beefy tri-bike chair set up, so she could easily wheel on the firm low tide beach. We did some quality dog walking at the off-leash Dog Beach in Solano. This place is amazing, every kind of pure breed and mixed breed dog you can imagine, and all having fun. We didn't see one fight which was amazing, since there was literally 100 dogs there at any one time.

Kelley is hanging strong, but the nerve pain is still often crushing. She is going through some transition in her meds, which is proving to be a little ugly. Hopefully at the other side of that there will be some better relief. As after all my visits with Kelley, I am left frustrated and sad at this condition that she is in, but always inspired by her determination, courage, and ability to seize the good moments when she is graced with them.

So into the NewYear we go, with our struggles and our hope.... , I am raising my glass to more days at the Beach.....Sue

Monday, November 7, 2011

Settled In!

Hi everyone, this post is from Ro. Kelley will not have internet for at least another couple of weeks so she asked me to post an update.

Kelley, Leona, and their precious pups (Wilbur & Dudley) made it all in one piece to the new apartment in Vista. Along the way they were able to visit with good friends at a get together hosted by Sue Norman at her place in S. Lake Tahoe. Kelley was really happy to see everyone.

Then Sue N. drove them the rest of the way from Tahoe to Vista, which gave Kelley much needed rest & recuperation time. Once they arrived at the new apartment, Sue, Caroline Paul, and Jody Conners moved everything in... the original trailer load, as well as a couple more hefty loads from the storage unit! Kelley is so thankful to these wonderful gals.

On Monday, 11/7 Kelley had her first of this winter's sessions at the new Project Walk building. Since she had been gone for several months, the first part of her initial session was a complete re-evaluation. She had been working her tail off all summer, and they were pleased with the strength gains and progress she made in the last few months. After the evaluation they followed with a short workout, and Kelley was still doing ok when I spoke with her a couple of hours afterward.
With the evaluation out of the way, her next session will start her full length kick-butt workouts, and Kelley is determined to make the most of them. As always, pain is a factor and progress is slow...but there IS progress and that's what keeps her going, (along with the love and support of her family and friends).

On a final note, I will say that I thoroughly enjoyed working with Kelley this summer and am in awe of her strength, determination, and the brilliant light that emanates from her.
Keep up the good work Kelley!

Love to all of you for your wonderful friendship and support!
Ro

PS: For those of you who wrote down of Kelley's new address, please note that minor corrections were made (see top of page).

Wednesday, October 19, 2011

Leaving MT

It's getting close to pulling chalks...We're all sad to leave "the little house in the woods".

Time Table:
Oct 23 - Leaving Montana

Oct 24 - We'll arrive at Sarah Lee Lawrence's ranch in Terrebonne, Oregon. I am so proud of Sarah Lee. http://sarahleelawrence.com She is a woman who follows her heart, and keeps following it around all the curves, eddies, moving current! Sarah Lee has done so much already with her young life: from rodeo star; college graduate; river guide; building her log home; write her book called " River House"!! www.amazon.com/river-house ; she also works with soil...yes soil, she has established an organic HUGE garden. She delivers throughout her community. Sarah Lee also ran the Blue Nile with me, and was a carrier of the parasite schistosomiasis...don't worry...after learning about my situation Sarah took the Proziquantel medicine (poison) and is be rid of the malady.

Oct 24 or 25 - I am also hoping to see a good friend Ken Streater and his family, living near Bend, Oregon. A master of many fascinating things!: Firstly, when I met Ken he was a river guide/area manager; then later, husband to Danielle; father to 3 children; Real estate broker w/Benchmark Real Estate Services in Redmond OR; a writer and almost author of the book
"A Gift of Courage"...Ken chose to write a chapter about my struggles and determination during this crazy time. "Thank you so much Ken, I am honored, and with your writings you have given me more courage to keep charging ahead and believing in myself".
I hope to see you and your family on our drive south. I'll be calling you soon. And thank you, thank you, thank you, for offering to drive me south, how sweet is that!!! yeah, I was having such bad nerve pain. But last week Ro, my exercise gal, took off on a 10 day vacation, giving me a huge break with the pain. I'm doing better now these past few days.

Oct 26 - arriving at Sue Norman's house and relaxing with family

Oct 27 - 5-9pm Please come and visit us in South Lake Tahoe!!! Friends and family are welcome to come and visit at Sue Normans house: Google Ponca Drive, South Lake Tahoe, Ca It is the farthest north corner on Ponca...don't know the address just now. You can't miss the cars and my white dodge van with white cargo trailer. Sue's cell 530-400-8999

Hope to see you soon
Be Well, kelle
y

Monday, October 10, 2011

Project Walk's Grand Opening and Steps to Recovery

Project Walk just emailed an announcement for a celebration in honor of their Grand Opening (of their 24,000 square foot facility--now world's largest spinal cord injury recovery center!!) and 7th Annual Steps to Recovery scheduled for November 5, 2001, 12pm-4pm http://www.projectwalk.org/grand-opening-and-steps-to-recovery-2011/

I know it's a long way to drive...so for those who can't make it to this southern celebration...the event will be live web cast direct from the Project Walk's website at www.projectwalk.org

Last years, 6th Annual Steps to Recovery, Jody and I attended, watching many of PW clients demonstrate their various stages of their walking abilities!! It was awe inspiring, and it gave me so much hope...the hope that helps fuel my dream. Maybe this years Step to Recovery will again fuel my hope....and whether it be this year or the next year or the next..etc., my dream and others will come true.

Montana update: We've had the fun pleasure to have my Auntie Darlene (my Dad's sister) come and visit us for the past week. Whenever she is here visiting she loves spending most (all) of her time outside, either pulling weeds or sawing and collecting brush--making piles on one end of the property or the other. I was able to get outside a couple times this week to help my mom and auntie Dar. Yesterday and today they burned. She even brought the makings for s'mores. I love my auntie.

Travel update: I am so excited and looking forward to checking out PW new facility!! Also, my Mom and I will be in South Lake Tahoe on Oct Wed 26 and Thurs 27. Thursday 5pm-9pm or so, Sue was thinking of having a small h'ordervers/dinner gathering (at her neighbors larger home)...it would be so fun to see friends who could make it up to her house. Also: Thurs. I'll be there pretty much all day, and Wilbur too...so if you could only make it to pop in and say hi, that would great too. Blessings & love, kelley

Wednesday, September 28, 2011

Fall is here in Montana

Ro's birthday was celebrated this summer with a BBQ and friends. Photo: front row - Steve & Ro Fundum and their Dog Norman, and myself. In back row - Bob, Steve, Diane, Carol Ann, and my Mom Lee,

The sun is lower on the horizon making it feel like fall, but it has still been in the 80’s!

Nov. 3, I’ll be starting back with Project Walk…I believe they will be happily surprised to see the progress Ro and I have made!

The Plan: Oct. 21, we'll be leaving Montana, heading south, taking 3 or 4 days getting to South Lake Tahoe, where Sue Norman lives. I’m hoping to stay for a couple days at Sue’s…around Oct 26-28...So if there is any of you in the area Please stop in and say hi!!

Sue will help us drive, down the east side of Sierra‘s arriving in Vista, and move into the Shadow Ridge Country Club Apartments, on Oct 29-30. Address: 1669 Live Oak Road, Apt. #33, Vista, CA 92081. Caroline Paul and Jody Conners will be there as well!!…to help out with the move…ALSO, to go standup paddle boarding. I want to try out my Dad’s inflatable kayak he gave me in the lagoon, Agua Hedionda, in Carlsbad….we can all take the weekend and Monday to move in & go play. So again, if there is any one in the area, Please stop in and come play!

Ro and I continue to work…the last few workouts we were at Ro‘s house; in her huge downstairs room dedicated to exercise and entertainment!!!; with French-doors opening to a meadow with a back drop of the Bitterroot Mountains. Progress keeps being made slowly, giving glimpses’ of hope I will keep getting stronger, I find it unbelievable how far I’ve come!!…it’s painful, and at times I wonder what the heck this journey is all about. I don’t ever want to give in to the pain.
Onward~~Love kk
P.S. Joanie, Heather, Mike T, Melancholy - Thank you for you supportive and loving message!!

Saturday, August 27, 2011

Video of Kelley Exercising

Hello again everyone,
I have uploaded the video of Kelley exercising on youtube at:
http://www.youtube.com/watch?v=2wYOmrfuD9c&feature=share

Ro

Friday, August 26, 2011


PERSEVERANCE is the hard work you do after you get tired of doing the hard work you already did. ~Newt Gingrich

This blog update is from Ro, Kelley’s Montana trainer. It is difficult for her to post regularly when she is training hard and dealing with pain.

The quote at the top of the page reminds me so much of Kelley. I’m sure no one will be surprised to hear that she’s working her butt off, enduring pain during training, and even more severe pain afterward. It totally wipes her out and she often finds it difficult to do even minor activities, like eating, conversing, and writing on her blog. Yet when it’s time for the next workout session there she is, ready to go through it all over again.

Fortunately it is paying off. When Kelley came here from Ca, I could tell that she had made progress from the months she trained at Project Walk. We have incorporated the PW exercises into her training and also added a few new ones. Kelley is doing some major butt-kicking work. She trains three days per week (2 heavy days, 1 light day), and that seems to be working pretty well.

Improvements are small, but every single session we see some kind of progress. For example, Kelley is able to sit with her legs hanging freely and kick without any help. Granted, the kicks are small… about a 6+” swing with the right leg and maybe about 2-3” with the left leg. But that is huge, considering that just three months ago, she was just kicking about 3-4” with the right and about ½-1” with the left. So basically, I would say that she has doubled her kick distance in the last three months.

We have started doing a standing exercise, where Kelley stands at her walker with her massage table behind her for safety. I hold her knees and she alternates her weight from one leg to the other, lifting the ‘weightless’ leg to mimic walking while I stabilize the straight leg. She also does mini squats while I keep her knees from bending too far. We are both excited about these exercises, but they do of course cause pain. More and more, she is getting pins & needle type pains from her trunk area, all the way down her legs and into her feet. She has described it as a feeling of coming out of frostbite, combined with burning, stabbing, etc. As unbearable as it is, the pain continues to be a good sign. She continues to have slight improvements in sensation, in addition to her progress in movement.

I hope this describes Kelley’s progress adequately. It is so difficult for her to sit and write when she is spending so much precious energy on training, eating, sleeping, and regenerating, so I am writing the blog this time for her. The picture at the top was taken between reps at the walker. There are also a couple of great videos of Kelley at the walker and some of her kicking but I need to convert them to a more compatible format. I’ll post those when I get them ready.

Until then, Namaste!

Ro